A pas de deux with MS
Monday 8 August 2011
Refurbishment Project - our house!
One more room was completed in our house this weekend, yay! My Dad came to fit the carpet at the weekend (he is a carpet fitter, so that's very handy!) so another room done :) Its taking quite a while to do the house, as we are doing most of it ourselves (well actually my husband, who is very good at DIY). He can plumb in radiators etc, so that all helps to keep the cost down. We still have a lot of patterned carpet and flocked wallpaper to tackle yet though! Still one more room done and a few more yet to go, onwards and upwards!
Monday 25 July 2011
Birthday Celebrations :)
What a nice few days it has been. At the end of last week it was my birthday, 36 eek! However, someone guessed my age at 26!! Yay result, 10 years younger! I had a very nice time celebrating with my husband on the day, with a trip to Bath and to one of my favourite restaurants, Demuths. It does some dairy and gluten free dishes and they are delicious :) The celebrations continued in to the weekend, when family and friends came to a Birthday BBQ, which was great fun and ended with a fun game of cricket. :)
Wednesday 13 July 2011
Neurologist Appointment
I have not long returned from an appointment with the neurologist. She is a new doctor at the MS centre and she was very nice. I asked her how she thought I was doing for someone who has had MS for nearly five years and she said very well, so fingers crossed, long may that continue. My first relapse which was nearly five years ago was diagnosed as labyrinthitis, so I didn't know then that it was MS. It was not until the following year when I had numb, tingly hands and my right eye went blurred, that I was referred to the neurologist and diagnosed.
I asked the neurologist about the new tablet licensed for MS called fingolimod and she confirmed I was not eligible to receive this, as it is for people with quite active MS, which fingers crossed I don't have. Also, at the moment, my husband and I are trying for a baby and therefore no MS drugs can be taken. I confirmed with the neurologist that the chance of me having a baby with MS were very low, as it is not an inheritary condition. According to the reports I have read there is a 2% chance they could get MS and a 98% chance they won't, so not bad odds and I will make sure they get plenty of Vitamin D. I hope I get pregnant soon,I am looking foward to having a baby and being a Mum, also during pregnancy you are protected from having an MS relapse, especially during the last three months, as the immune system is suppressed during pregnancy. So it seemed quite a positive appointment, so I will keep up my positive attitude, which I always try to have and hopefully it helps :)
I asked the neurologist about the new tablet licensed for MS called fingolimod and she confirmed I was not eligible to receive this, as it is for people with quite active MS, which fingers crossed I don't have. Also, at the moment, my husband and I are trying for a baby and therefore no MS drugs can be taken. I confirmed with the neurologist that the chance of me having a baby with MS were very low, as it is not an inheritary condition. According to the reports I have read there is a 2% chance they could get MS and a 98% chance they won't, so not bad odds and I will make sure they get plenty of Vitamin D. I hope I get pregnant soon,I am looking foward to having a baby and being a Mum, also during pregnancy you are protected from having an MS relapse, especially during the last three months, as the immune system is suppressed during pregnancy. So it seemed quite a positive appointment, so I will keep up my positive attitude, which I always try to have and hopefully it helps :)
Sunday 10 July 2011
Sunny summer weekend and vitamin D
Yay, my first post! Its been a nice weekend so far. We had a nice BBQ at our neighbours yesterday, its been quite sunny and therefore I have been able to get some sun based vitamin D, Research has shown that the more vitamin D, the less relapses are had. We need to move to a more sunny country, then England perhaps. Our kind neighbours made sure the BBQ suited my dietary requirements of no dairy and gluten, After being diagnosed with MS back in November 2007, after the initial shock, I started to read lots about MS and MS and diet, had some intolerance testing and now no longer eat dairy or gluten. I realise the medical world may not advise this, as there is no evidence that this helps, but there does seem to be a lot written about this and quite a few of the people I have met with MS have also changed their diets. The MS specialist did say, there was some evidence a mediterraean diet could help...
My husband and I were planning a bike ride this afternoon, but he is not feeling 100%, (I think he just wants to watch the Grand Prix) so we are not going now. Exercise is good for MS and therefore people with MS are encouraged to do some. Instead I will go and read in the garden and soak up some more sun :) R
My husband and I were planning a bike ride this afternoon, but he is not feeling 100%, (I think he just wants to watch the Grand Prix) so we are not going now. Exercise is good for MS and therefore people with MS are encouraged to do some. Instead I will go and read in the garden and soak up some more sun :) R
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